Tag Archives: rare disease

Soft Bones Founder Deborah Sittig is Today’s Honoree

Deborah Sittig is a mom of three who runs her own communications company with another.  Deborah’s life changed when her second child was born with a rare disease that only 1 in 100,000 people are diagnosed with and where there … Continue reading

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Today’s Honoree is Jeff Wuchich

Jeff Wuchich, president of the Alternating Hemiplegia of Childhood Foundation has worked tirelessly to raise awareness of Alternating Hemiplegia of Childhood, a rare neurological disorder affecting one in 1 million children. AHC causes bouts of temporary paralysis affecting one or … Continue reading

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