Marisa is a speaker, author of the new memoir CHRONICALLY FABULOUS, and founder of the NY nonprofit and social community, LupusChick. This past year has been very hard for many of us but that’s nothing new for Marisa. Being diagnosed with Lupus, having five small strokes and 35+ hospitalizations later Marisa is resilient and is giving people hope.
Lupus is a chronic inflammatory autoimmune disease with no cure, and in some cases the disease is fatal. 90 percent of patients are women. More awareness and medication options are needed. Surveys are still showing that up to 41% of people are not comfortable shaking hands or sharing food with someone with lupus even though the disease is not contagious. LupusChick/Marisa reaches almost 400K people a month, spreading awareness, education and resources on latest research, news, and inspiring content to let patients know they can continue to live the life they have always dreamed of.
Recently, Marisa wrote her first book, Chronically Fabulous which is an inspirational memoir and self help book (with recipes included). Chronically Fabulous teaches readers with chronic illness that a diagnosis or disability does not have to define them. With personal stories from Marisa and tips and techniques, readers learn how to pursue their deepest passions and reinvent themselves, using the gifts and talents already bestowed on them, as they move forward in their journey.
Marisa Zeppieri is a speaker, author of the new memoir CHRONICALLY FABULOUS, and founder of the NY nonprofit and social community, LupusChick.com. LupusChick serves to educate and empower those living with lupus and other autoimmune diseases and chronic illnesses. The community reaches almost 400K people per month, and was the launching point for CHRONICALLY FABULOUS, which inspires readers to continue striving toward their goals and not let a diagnosis or disability define who they are. Marisa is a former health journalist and Mrs. New York, and has been a fierce advocate and speaker in the world of chronic illness for over 13 years. She has spoken for and acted as a consultant for Astra Zeneca, GlaxoSmithKline, Novartis and Janssen Pharmaceuticals, and has served as the keynote speaker for UMASS Med School, Simmons College, and Patients Like Me. She currently serves as a contractor for The Department of Defense’s Lupus Research Program, the host of the Lupus Foundation of New England’s TILLY series, and her LupusChick story is featured as the 35th chapter of Lady Gaga’s new Anthology, CHANNEL KINDNESS.
Visit https://lupuschick.com/about for more information.