Monthly Archives: September 2020

Devereux Georgia Client and Family Advocate/ Risk Manager Sophia Martin is Today’s Honoree

Devereux Georgia client and family advocate/risk manager Sophia Martin was recently highlighted as a Healthcare Hero. In your role, what are your main responsibilities? I have two primary roles at Devereux Georgia both are extremely important for the care and … Continue reading

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TORCH Award Winner Mark Dant is Today’s Honoree

Mark Dant: A former police officer transformed by parenthood into the first national advocate for Mucopolysaccharidosis (MPS) I, a rare disease in which is son has. His son Ryan was given a life expectancy of 10-12 years and is now … Continue reading

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TORCH Award Winner Melanie McKay is Today’s Honoree

Melanie McKay: A registered nurse and mom who set her mind to connecting families and advocating for statewide screening of Infantile-Onset Pompe Disease. Melanie was honored for her efforts in advocating for education, much-needed awareness, and research for a rare … Continue reading

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TORCH Award Winner Rylee Noble is Today’s Honoree

Rylee Noble: A tween with the rare disease Mucopolysaccharidosis (MPS) was honored for her efforts in advocating for education, much-needed awareness, and research for this genetic disorder that causes a deficiency of an enzyme required to break down certain protein. … Continue reading

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TORCH Award Winner Sharon Lagas is Today’s Honoree

Sharon Lagas: A mom who made it her mission to change the landscape of research for her boys after three generations of her family were diagnosed with Alport Syndrome including her and her mom and her brother’s children. Sharon co-founded … Continue reading

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Devereux Pennsylvania CBHS Direct Support Professional Jasmine Davis is Today’s Honoree

At Devereux, employees are heroes in every sense of the word, helping children, adolescents and adults with emotional, behavioral and cognitive differences lead more fulfilling and rewarding lives. These committed and compassionate individuals humbly dedicate themselves to serving – and … Continue reading

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FounderPool Co Founder Chandra Duggirala is Today’s Honoree

FounderPool de-risks startup entrepreneurs by sharing equity with other top VC-backed founders as a community of practice. Joining a pool diversifies risk and unlocks your illiquid shares to invest in the best startups who, in turn, are invested in your … Continue reading

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Frog Fuel COO and Founder Jeff Byers is Today’s Honoree

Frog Fuel was designed by Navy SEALs and a Stanford biochemist to be the most powerful protein in the world. Their unique nano hydrolyzed collagen protein digests 4x faster than whey protein and is recommended by nearly 4,000 medical facilities for … Continue reading

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Cardthartic Founder Jodee Stevens is Today’s Honoree

Cardthartic is a US card publisher that prints more than 700 designs on cards, boxed notes, magnets, art prints, and minicards — all in the USA using soy ink on recycled paper. The products are sold through 2,600 top card … Continue reading

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TORCH Award Winner Evren Ayik is Today’s Honoree

Evren Ayik: College freshman who became a bold spokesperson and lobbyist for the rare disease impacting his life — acid sphingomyelinase deficiency (ASMD). After years of feeling different because of his rare disease, at the age of 16 Evren became … Continue reading

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